191 – A Mother Who Never Stops

September 4, 2022 twodisableddudes

Tracy Dixon Salazar is a mother, scientist, and Executive Director of the Lennox-Gasteau Syndrome Foundation.

Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability.

The LGS Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

“I don’t think we should be writing off Rare disease Patients and assigning them death sentences anymore. I think we should be rolling up our sleeves and doing a covid like movement to actually start saving some people’s brains”

Tracy Dixon-Salazar

This episode brought to you in part by Horizon Therapeutics.

With the nature of rare and orphan diseases, we only advance when we work together. #RAREis brings together rare stories to help foster community through encouragement. You can share your story at rareiscommunity.com.