129 – She Created What She Needed – Effie Parks

Effie Parks immediately related to Rare Disease podcasts when her son Ford was diagnosed with CTNNB1. 

However she soon caught up with all of the episodes and came to the end of her life line.  So she created the thing that she needed the most.  She discusses disability as diversity and connects with parents and many others in the Rare Community through her incredible podcast Once Upon a Gene.  Listen to this conversation between Effie and the Dudes to get insight on the value of connecting to others.

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