211 – Thriving with Duchenne – RDD 2023

March 27, 2023 twodisableddudes
  • For Rare Disease Day 2023, we were honored to moderate a virtual panel with our friends at Jett Foundation.  The theme was Thriving with Duchenne; a Rare Disease Day event focused on mental health and anxiety and it features a diverse panel of patients, caregivers, a life coach, and a Psychologist. 
  • Duchenne Muscular Dystrophy (DMD) affects mostly males and causes progressive muscle damage in the entire body. It is the most common fatal pediatric disorder. 
  • Duchenne has no cure. But the individuals in this episode are determined to Thrive with Duchenne.
  • You can watch the video of this event here.