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March 27, 2023 twodisableddudes
211 – Thriving with Duchenne – RDD 2023
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- For Rare Disease Day 2023, we were honored to moderate a virtual panel with our friends at Jett Foundation. The theme was Thriving with Duchenne; a Rare Disease Day event focused on mental health and anxiety and it features a diverse panel of patients, caregivers, a life coach, and a Psychologist.
- Duchenne Muscular Dystrophy (DMD) affects mostly males and causes progressive muscle damage in the entire body. It is the most common fatal pediatric disorder.
- Duchenne has no cure. But the individuals in this episode are determined to Thrive with Duchenne.
- You can watch the video of this event here.