090 – LIVE at the 2019 Global Genes RARE Patient Advocacy Summit

October 21, 2019 twodisableddudes 2 comments
2DD Global Genes Patient Perspective

We presented the 2DD LIVE forum at the 2019 Global Genes RARE Patient Advocacy Summit. We laughed and cried and had an incredible time connecting with the Rare Disease Community about the patient perspective. Listen to this episode for genuine insight and hearty hilarity from our three panelists:

Onno Faber, founder of RDMD
Twitter: twitter.com/onnofaber
Instagram: instagram.com/onnofaber

Neena Nizar, founder of The Jansen’s Foundation
Twitter: twitter.com/neenanizar
Instagram: instagram.com/thejansensfoundation

Katie Stevens, Executive Director of Team Telomere
Twitter: twitter.com/sixnwstevies
Instagram: instagram.com/sixstevies

If you enjoyed this episode, check out: Be Yourself LIVE at Amicus

2 Comments on “090 – LIVE at the 2019 Global Genes RARE Patient Advocacy Summit

  1. Boys, when you started the podcast project you were good. Now, you are great! Both of you were born to do podcast and radio. Such a vibrancy, such a good mood, such a wit. I continue to love you both!!!

    1. Amalia! This means so much to us. Thank you for the kind words. We are having fun and comments like this are what drives us. Thank you! We’re all in this together.

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.