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Kyle’s Wheelchair was damaged on an American Airlines flight in April.  It is now September and it is just now getting resolved.  

While working his way through the situation, Kyle phoned a friend, Mary Caruso who provided advice and encouragement about the process and how to conduct oneself while advocating for what you need.  Ultimately Mary’s advice lead to a reimbursement check from the airline.

You have just as much right to be out there traveling as anybody else.

Mary Caruso

You gotta know your rights and you gotta believe that you are just as important as the person next to you.  Take it from Mary.

A couple resources that Mary Mentioned:

• File A Complaint
• Know your rights

This episode is brought to you in part by Horizon Therapeutics.

With the nature of rare and orphan diseases, we only advance when we work together. #RAREis brings together rare stories to help foster community through encouragement. You can share your story at rareiscommunity.com.