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April 10, 2022 twodisableddudes
178 – Man Turning Into Stone – Joe Sooch
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Joe Sooch points out that we only have one life to live so we better make the most of it. He has a rare disease called Fibrodysplasia ossificans progressiva (FOP) – a genetic disorder that causes soft tissues to transform permanently into bone.
Joe uses a wheelchair and FOP has limited his physical abilities in many other ways. However he is determined to make the most of the time he’s been given.
Find Joe Sooch on YouTube or Instagram.
Listen to Joe interview us on his podcast Two Mics, One Joe Sooch.
1 Comment on “178 – Man Turning Into Stone – Joe Sooch”
Good morning, gents! Just to let you know this podcast tied in well to a thread in FAPG, how do parents cope successfully on a daily basis living with their child’s FA? I just provided the link to FAPG with the note to tune in particularly to minutes 35+.
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