142 – A Dedicated Advocate in India

How do we build an effective Global Rare Disease community?  It all starts with sharing stories and ideas.  Join the dudes as they hear Manish Gore’s story about Alport Syndrome, and discuss the differences between the US and India and the Rare Disease World.

Manish’s Resources:

Manish’s Blog, Doting Beans: www.hope4kidneys.info

Organization for Rare Diseases India: www.ordindia.in

Mental Health, Zifcare, India: www.zifcare.com

Alport Syndrome Foundation of USA: www.alportsyndrome.org

Kidney Research UK: www.kidneyresearchuk.org

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