How do we build an effective Global Rare Disease community? It all starts with sharing stories and ideas. Join the dudes as they hear Manish Gore’s story about Alport Syndrome, and discuss the differences between the US and India and the Rare Disease World.
Manish’s Blog, Doting Beans: www.hope4kidneys.info
Organization for Rare Diseases India: www.ordindia.in
Mental Health, Zifcare, India: www.zifcare.com
Alport Syndrome Foundation of USA: www.alportsyndrome.org
Kidney Research UK: www.kidneyresearchuk.org