“There is real power in not caring what others think.”
Ben’s Friends is an online social network for people with rare diseases. Ben Munoz started it after suffering an AVM in 2006 and undergoing multiple brain surgeries. During his recovery he was feeling alone and scared so he reached out to others to form Ben’s Friends. Ben joins the dudes to impart his knowledge and wisdom from his years of leading Ben’s Friends and the company he created.
Ben’s Friends: https://www.bensfriends.org/
Episode 69 of Once Upon a Gene: https://effieparks.com/podcast/episode-069-bens-friends