How do we get moving again after a life threatening diagnosis? Start a YouTube Channel of course! That’s what Katie did. She started connecting with the Vascular Ehlers Danlos Syndrome (VEDS) community and now she leads the VEDS Movement for the The Marfan Foundation. Listen to hear her story.
Find out more at thevedsmovement.org.
And find out more about the people behind the movement at translucentone.blog.