We are often surprised by the twists and turns of life – especially when confronted with disability or a rare disease like Ehlers-Danlos Syndrome (EDS).
Lara Bloom was surprised when she was diagnosed with Ehlers-Danlos Syndrome – a disease that causes complications with her connective tissue. She was even more surprised to meet a man who helped her find her purpose – launching The Ehlers-Danlos Society.
Lara is president and CEO of The Ehlers Danlos Society and she is a global leader in the rare disease community.
Lara has taken life’s twists and surprises and turned them into a beautiful life of service to others.
Join us for laughter, and a conversation about what it means to build and sustain a life of advocacy.
Lara’s Documentary about her participation in the London Marathon: Issues With My Tissues.
Connect with Lara: https://www.larabloom.com/
If you liked this episode you might like to hear from another Rare Disease leader – 006 – Nicole Boice.