Welcome to the Two Disabled Dudes Podcast! In this episode Kyle Bryant and Sean Baumstark talk about becoming friends, creating the podcast and their connection through the diagnosis of Friedreich’s ataxia (FA). Sean reached out to Kyle shortly after he was diagnosed with the intent to dream big, execute like mad, and connect to others along the way. What started as a meeting over beer and pizza has developed into a partnership poised to take over the world! 🙂
In 2010, Sean and Kyle participated in “The world’s toughest bike race” – Race Across America, as part of 4 man Team FARA. The race started in Oceanside, CA and ended in Annapolis, MD. RAAM is not a stage race which means the clock never stops. The team raced 24 hours a day for 8 days. Their amazing adventure is captured in the award winning documentary, The Ataxian.
Sean and Kyle are always dreaming up a list of challenges to do with friends. Their horizons expand as they look to the future with hope and optimism.
When strangers become friends we start to see our disabilities objectively and not as a “good” or “bad” force in our lives. Adaptive devices become tools to improve our lives and conversations about disability start to enrich our lives rather than tear them apart. The focus is on the empowerment Kyle and Sean get by connecting to the FA community, the Rare Disease Community, and anyone with similar experiences.
Friendship is an incredible force and these Two Disabled Dudes invite you to come along as they continue the adventure.
A few of the resources we talked about in the episode:
- Friedreich’s Ataxia Research Alliance (FARA): curefa.org.
- National Organization of Rare Disorders (NORD): rarediseases.org
- Global Genes: globalgenes.org
- Rare Disease Day: rarediseaseday.org, for US activities: rarediseaseday.us
If you liked this episode you might enjoy our 2-part Episode 50:
- Kyle Interviews Sean: http://twodisableddudes.com/050-sean-kyle-interviews-sean/
- Sean Interviews Kyle: http://twodisableddudes.com/050-kyle-sean-interviews-kyle/