The Two Disabled Dudes Podcast - Navigating Disability
rideATAXIA Europe – Le Peloton de l’Espoir was a 450 mile ride from Strasbourg, France to Lyon, France during July 1-8, 2017. There were 20 riders from the US and 30 riders from France. The purpose of the ride was to bring together the French and US FA communities as one united FA community, moving to the finish line together. Join us as Sean “interviews” Kyle about the ride.
Join us for a discussion about patient engagement in rare diseases with Horizon Pharma. This is our first recording in front of a live audience!
In college, his friends called him The Beast. But then he got mysteriously sick and was on the brink of death 5 different times, stumping specialists. Diagnosed with Castleman Disease, Dr David Fajgenbaum earned his MD and started research on himself. He formed the Castleman Disease Collaborative Network (CDCN) to speed the progress toward a cure for himself and the entire Castleman Disease Community.