The Two Disabled Dudes Podcast - Navigating Disability
Join us for a discussion about patient engagement in rare diseases with Horizon Pharma. This is our first recording in front of a live audience!
In college, his friends called him The Beast. But then he got mysteriously sick and was on the brink of death 5 different times, stumping specialists. Diagnosed with Castleman Disease, Dr David Fajgenbaum earned his MD and started research on himself. He formed the Castleman Disease Collaborative Network (CDCN) to speed the progress toward a cure for himself and the entire Castleman Disease Community.
Sometimes being brave is what gets us through. Facing the unknown and facing unknown possibilities down the line is familiar to any of us living with a disability.
Maybe no one understands that better than Rudy Garcia-Tolson, who made the decision to have both of his legs amputated above the knee when he was only five years old.