234 – World Duchenne Awareness Day – Jett Foundation

November 1, 2023 twodisableddudes
Posted by twodisableddudes on
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The Dudes recently had the privilege to host a virtual panel for Jett Foundation’s celebration of World Duchenne Awareness Day 2023.  This panel includes Patients, Caregivers, and Medical Professionals.  Some of the topics discussed include:

  • Understanding Manifesting Carriers
  • Common Misconceptions About Female Carriers
  • Challenges of Transitioning from Pediatric to Adult Care
  • Geographic Challenges and Access to Care
  • The Role of Virtual Visits
  • Tips for Navigating Healthcare Challenges

We are continuously impressed with the DMD Community’s drive to help each other navigate challenging situations.  Thank you, Jett Foundation, for allowing us to be part of this conversation.

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