Our Featured Guests

We've been joined by these amazing individuals who have shared their stories and talked about the work they are committed to. Take a listen...

Little Levi & Mark Brown

Little Levi &

Mark Brown

Patient Advocate & CEO (Respectively) Miracle Flights

Episode 049

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Luke Rosen

Patient Advocate, Actor, Writer

Episode 048

Sick Chicks

Shira Strongin

Founder, Sick Chicks International

Episode 045

Francisco Sanchez

Francisco Sanchez, MD

SCI Survivor & Advocate

Episode 044

Nic Novicki

Nic Novicki

Actor, Comedian, Producer, Director

Episode 043

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Arash Bayatmakou

Author, Speaker, Spinal Cord Injury

Episode 040

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Aimee Lyons

Crossfit King of Prussia, Pennsylvania

Episode 039

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Ilana Jacqueline

Advocate, Speaker, Blogger, Author, Rare Disease Patient

Episode 038

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The Ataxian/FARA Panel

Tom Hamilton, Angel Martin, Kyle & Sean

Episode 037

Kara Eichelkraut

Kara Eichelkraut

Patient Engagement Manager REATA Pharmaceuticals

Episode 036

2DD at Reata Pharma

Warren Huff & Colin Meyer

CEO & CMO, respectively        REATA Pharmaceuticals

Episode 035

Katie Stevens

Katie Stevens

President, DCO              Dyskeratosis Congenita Outreach

Episode 034

Paul Avery - World of Beer square

Paul Avery

CEO, World of Beer, Rare Disease Advocate

Episode 029

DrewDudley

Drew Dudley

Speaker, Leadership Expert

Episode 025

cure fa logo

Tom Hamilton

Co-founder Cure FA, Rare Disease Advocate

Episode 024

CAF logo

Patrick Lawrence

Senior Project Manager, CAF

Episode 023

Dr. Dan Gotlieb

Dr. Dan Gottlieb

Psychologist, Therapist, Radio-host, Author

Episode 022

David-Fajgenbaum

David Fajgenbaum, MD

Doctor & Patient,                            Castleman Disease

Episode 019

Rudy CAF

Rudy Garcia-Tolson

4-time Paralympian, Challenged Athletes Foundation Spokesperson & Team Ossur Ambassador

Episode 018

Roger Crawford

Roger Crawford

Motivational Speaker, Best-selling Author

Episode 017

Liz Applegate

Dr. Liz Applegate

Dir. of Sports Nutrition, UC Davis, Author, Writer, Professor, all-around nutrition & fitness expert.

Episode 016

TeamFARA RAAM Finish

John Lockwood &    Mike Mellott

Team FARA's Race Across America Team, 2010

Episode 015

Mike & Kyle

Mike Bryant

Crew Chief, Team FARA, RAAM 2010. Also, Kyle's Dad.
Episode 014

Matt Fritsch

Matt Fritsch

Advocate
Spinal Cord Injury Community

Episode 012

Ron Bartek

Ron Bartek

President, FARA

Friedreichs Ataxia Research Alliance

Episodes 009 & 011

Paul-Melmeyer

Paul Melmeyer
National Org. for Rare Disorders (NORD)
Episode 008

Max Bronstein A

Max Bronstein

EveryLife Foundation for Rare Diseases

Episode 007

Nicole-Boice

Nicole Boice

CEO, Global Genes

Episode 006