Two Disabled Dudes Podcast

  • Amazing
    October 7, 2017 by sarahbrownemusic from United States

    Kyle Bryant & Sean Bamstark are two wonderful human beings. Thank you for doing what you do <3

  • Ms.
    October 6, 2017 by Marcy Freed from United States

    I enjoy the voice Sean and Kyle give to disability. They are athletes, two regular dudes and two exceptional men. The Podcast os work listening to and sharing.

  • Amazing Podcast
    October 6, 2017 by SCrazysox from United States

    I can't even begin to describe how awesome these podcasts are. I've had the opportunity to sit for a live show once and it was great. Kyle and Sean rock ?

  • Authentic dudes
    October 6, 2017 by ToddyP from United States

    The Two Diabled Dudes' conversational dialog is sincere and that's what makes this show special. Two amazing guys living with a rare disease but overcoming with analysis and humor. The subjects are diverse and their is literaly something for everyone… inspiration, knowledge, laughs and friendship. Thoughtful and practical, give Two Diabled Dudes and you'll be a fan too.

  • Helpful and encouraging
    October 6, 2017 by DGraczyk from United States

    Great guests and relevant conversation whether you have a disability, care for someone with a disability, work on health care, or just need a little encouragement. Kyle and Sean are an excellent balance between serious and humorous and so easy to listen to.

  • Two Disabled Dudes
    October 5, 2017 by Dlittell from United States

    The podcasts are informative for the FA community and all disabled people. Kyle and Sean are entertaining and fun to listen to. The topics are relevant and important. The guests are phenomenal. I encourage everyone with a disability or cares for someone with a disability to listen.

  • Two Positive, Awesome Dudes!
    October 5, 2017 by CPConstantlyVaried from United States

    If you ever need some perspective on life and a good laugh, listen to these guys. Other people in their situation could be pessimistic and cynical (with good reason!) but these two are the most positive and witty podcasters out there. Super impressed with them, keep it up!

  • Two Awsome Dudes
    October 5, 2017 by BarryByrne from United States

    The podcast always has a lesson for us all. Keep up the great work guys. You inspire the whole FA community to be kind, thoughtful and keep hope alive (not to mention hilariously funny and fun).

  • Love these guys
    October 5, 2017 by KD95818 from United States

    Funny, inspirational and creative. Love everything that these guys are about. ?

  • Inspiring Motivating and Entertaining
    October 5, 2017 by QFinnie from United States

    I love listening to these guys and the great guests that they have on their show. It is always educational, inspiring and motivating. Kyle and Sean's outlook, humor and grace that they maneuver rare disease with is amazing and an awesome way to spread awareness and learn about the different aspects of living with FA. Thank you for sharing your adventures with us!

  • Listen you won't be disappointed
    October 3, 2017 by jtw62 from United States

    They are funny, interesting, fun, and informative.

  • Thanks to Kyle and Sean
    September 29, 2017 by courtney_mccormick from United States

    Thank you for your openness, for your advocacy, and for the gift of this podcast.

  • My New Fave
    September 10, 2017 by katstevens8 from United States

    As a rare disease advocate I appreciate finding joy in the journey! Kyle and Sean nail it in these awesome podcasts. Bringing humor and humility in each story. Bravo!!!

  • Crazy taxis, evil cats
    August 31, 2017 by Facebook fan x 200 from United States

    Abbott and Costello, Farley and Spade, Christmas and Dunne, and now... Bryant and Baumstark. I'm still trying to figure out who's the straight man. Whether it's a crazy taxi driver or feral in their kitchen, these two dudes make learning about the disabled community fun. They navigate some pretty serious subjects while breaking it up with stories and their quirky sense of humor. The large variety of guests keeps me coming back for more. Looking forward to the next one!

  • Should be called Two Awesome Dudes
    June 20, 2017 by sackingsjessa from United States

    Really great insight to living with a disability and how to push beyond. Fun and effortless conversation. Funny and charasmatic dudes. A postive and encouraging podcast for all. Keep up the great work!

  • Amazing podcast
    May 6, 2017 by Sput-nick-nick from Australia

    Really loving this podcast. Great to hear Sean and Kyle talking about how life is more about how you react than what happens to you and really facing up to their disease. Amazing to hear their stories and really feel like you are part of their conversation and journey.

  • Wonderful podcast
    April 1, 2017 by Megfiona from United States

    Kyle and Sean have such an effortless way about their conversations. They are funny, informative, inspirational, and genuine. I very much enjoy listening to and supporting this podcast. And I'll keep trying to contact people at Uber or Lyft to sponsor you. 🙂 Thanks for doing such great work!

  • Inspirational, optimistic
    March 29, 2017 by Teroid from Australia

    This podcast is great. Two things stand out for me so far: 1. Sean and Kyle talking about dealing with diagnosis very openly and honestly and concluding that by being involved in raising awareness of FA "I take control of my FA. It no longer controls me." 2. Your life is defined 10% by things that happen outside your control and 90% by how you respond. I look forward to hearing more pearls of wisdom!

  • Inspiration
    March 9, 2017 by JMStaub from United States

    Love these guys; they're a must listen for anyone living with a disabling condition, and an example for all.

  • Such a positive perspective!
    February 1, 2017 by Monica-colorado from United States

    I love these guys and I am so happy to have found their podcast. I love their attitude about traveling despite mobility challenges. My husband has MS, and while I think we have a can-do attitude, we have a lot to learn from Kyle and Sean.

  • It is life!
    January 29, 2017 by MiniMe_Sar from United States

    This has truly helped me and my husband with his diagnosis. He wanted to ignore it for a very long time and hearing how you both handled your news was so great! Knowing people with disabilities (and in our case, THIS one) and hearing they lead normal lives is so refreshing instead of all they are told they CAN'T do! Love how it covers things that happen everyday and how different people cope.

  • Makes us feel understood
    January 26, 2017 by Chollingsworth62 from United States

    Really enjoying this podcast from Kyle and Sean. They inspire all people. Everyone can take away a lesson in life from them.

  • The Unspoken Truth
    January 23, 2017 by Avery Zaritsky from United States

    I listened to this in the car this morning while driving my kids to school. By the time we got there, we were all laughing and they said "pause it, play the rest at pick up! We want to hear it!" Its so nice to know I'm not fighting the disabled battle alone and it gave me and my family back some tolerance! Very inspiring, keep up the conversation!!!

  • Smart, funny, caring, informative
    January 22, 2017 by hbredfeather from United States

    I love this podcast! I really appreciate the honest, open sharing that is peppered with laughter & good information about navigating the world for those with (and without) disabilities. The Welcome episode really sets the stage for what Kyle & Sean are facing with FA and it also reveals a friendship that is fun to listen in on. I've listened to the next 3 episodes so far & enjoyed them all - it's helping me with how I view myself and others in the world. We all face challenges and struggles. The hosts encourage us all to live better in each moment, yet apply compassion when we each may stumble. This podcast is a bright spot and motivation to "live with urgency" as a Kyle & Sean do. Thanks dudes!

  • Easy listen!
    January 22, 2017 by Joeytyler2017 from United States

    Funny, articulate, educational and professional sounding! For a couple disabled dudes, they knock this podcast out of the park! Sean and Kyle allow the listeners to hear their unique and humorous perspectives on life from the disabled view. Highly recommend.

  • Real people
    January 19, 2017 by Famlw from United States

    As an able-bodied individual, I find this podcast so helpful and genuinely interesting. Kyle and Sean's stories of their real life experiences have helped me see their challenges from a different perspective.

  • Thumbs up - A1
    January 17, 2017 by Afishyfish80 from Ireland

    Loving this podcast. Relaxed, frank and often funny conversation about the challenges and nuances of living life with a disability. Have listened to 4 episodes and it's now my favourite podcast. Keep up the good work lads. BR

  • 00, 01, 02, 03
    January 17, 2017 by Spinner's Dad from United States

    All 4 sessions are great!

  • Brilliantly uplifting
    January 8, 2017 by Adam Griffies from United Kingdom

    As someone with FA myself, listening to this has been amazing. Such a great insight into life with Friedreich's Ataxia, or maybe any other disability. Would definitely recommend listening.

  • Add this to your playlist!
    January 2, 2017 by Howard Hess from United States

    Meet Kyle and Sean, two dudes who suffer from Friedreich's Ataxia (FA). Unfamiliar with FA? Doesn't matter. Give 'em a listen. You won't find two more genuine and likeable guys out there. Amongst their friendly banter and casual conversation, you'll find insight, inspiration, and encouragement... all this and more from a couple of guys who don't let their disability define what they can and cannot do.

  • Your new favorite podcast. For real.
    December 13, 2016 by EMagone from United States

    If you don't already know Kyle, level yourself up and do some research. One of the most amazing humans I've been fortunate to encounter. This is just the latest layer of his epic legacy in the world. <3

  • Awesome perspective on disability.
    December 13, 2016 by Matt Lafleur from United States

    Gives some much-needed brevity to the lives of people with disabilities. Doesn't try to be showboating or sugary inspirational. Just genuine. 2 dudes talking over Skype about their lives, which tends to be affected by a rare disorder they share, Friedreich's ataxia. Poignant. Can't wait for more episodes.


 

Posted by twodisableddudes on February 13, 2017

005 – Rare Disease Day Special Guests

In the rare disease community, strength is in unity and supporting one another.

Image courtesy of debra

February 28th is globally recognized as Rare Disease Day. Since Friedreich’s ataxia (FA), the disease shared by us Dudes, is considered a rare disease, five episodes will come out in February, instead of one episode every other week, as normal.

 

In this episode we talk about what is meant by “rare diseases” and how rare they really are.

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Posted by twodisableddudes on February 9, 2017

The Big Apple, its Firefighters, Subways and FA – By Alison Avery

 

Alison Avery at airport with service dogAvery sisters at NYC subway platformAlison Avery in scooter on Brooklyn Bridge

I moved to New York City in June last year and a lot of people were a little skeptical as to how I would make it here living with Friedreich’s Ataxia. I made it my personal goal to show myself and them that I could live here, and so far I’ve definitely exceeded that goal. I wanted to discover all of the different routes to travel around the city since I don’t have a car here (no one does!).

I’ve grown accustomed to hailing taxis, maneuvering onto buses and finding my way underground on the subway system. Traveling above ground is simple and easy, but sometimes longer because of traffic. Taking the subway makes me feel like a true “New Yorker” (even though I’m forever a Florida girl) so I tend to take the subway when I can.

The subway is tricky when you’re someone who tries to avoid stairs. Of over 500 subway stations, less than 100 have elevators. And that’s when those elevators are actually working.

On the hottest day of the summer, I took the subway to meet a friend for dinner in Chelsea. I checked MTA.com to see if the elevators at those stations were working, but somehow read it wrong (I was still new to the city!). I took the train down to 14th street only to find that the elevator was not working…. Let me remind you, this is the hottest day EVER and I am stuck two floors underground.

I had always wondered what would happen if I got stuck, but didn’t necessarily want to find out. I guess that day was today. After pressing the call button on the elevator, I was almost immediately connected to someone that could help. It was difficult to hear him over the speaker due to the other trains going through the station, but he said help was on the way.

It felt like I waited for an hour, but it was probably only 20-30 minutes. All of a sudden, a lot of firefighters started walking down the stairs to my rescue!! Some helped me walk up the stairs while the others carried my scooter up. When I finally got to the street, I realized they drove in their fire truck to come get me out of the subway!! #VIP

It’s great to know that there is a system set up to help people who use assistive devices up the stairs when the elevator is broken. New York may not be the most accessible place, but the people here are so nice and helpful. If you plan on visiting the city and would like any more tips on travel, let me know!

Posted by twodisableddudes on January 30, 2017

004 – Travel Gone Wild – How to conquer anxiety during travel with a disability.

There is a lot of anxiety that comes along with travel, especially when also factoring a disability into the situation. There a few important things that help us battle that anxiety including a strong game plan informed by the experiences of others, and the emotional flexibility to roll with challenges and continue to move forward. In this episode, Kyle and Sean share insights from listener feedback and personal stories of their travels. (more…)

Posted by twodisableddudes on January 30, 2017

Business Travel With FA – By Christina

Friedreich’s Ataxia (FA) or not, traveling can be a stressful event between the planning and traveling. It can take a toll on person mentally and physically. Adding a debilitating disease on top of the stress does not make it easy! However, as Gandhi once said, “Your struggles develop your strengths. When you go through hardships and decide not to surrender, that is strength”. I recently had the chance to travel for work where I decided to overcome my hardships of living with FA with the idea of traveling.
I still try to try live an independent life to the best of my ability. I still walk, with little assistance of a friendly arm or my recently invested rollator. I started working at the Hyatt at The Bellevue in Philadelphia, PA as the Reservations Coordinator this past July. Within months of me working there, I was presented an amazing opportunity to travel to Hyatt’s Corporate Reservation Center in Omaha, NE. This was my chance to travel on my own, connect and meet with other Revenue/Reservations Colleagues and receive systems training to advance my career. Even though I was a little apprehensive not only traveling on my first business trip, but traveling for the first time since my diagnosis of FA (it will be five years this upcoming April). I decide to put myself out there and not let FA define me.

When making flight arrangements prior to my trip, I requested handicap service for boarding on and off the plane and I am very glad I did! With the quick turnover of changing of flights with layovers, I knew it was not practical of walking from gate to gate in time. The wheelchair assistance came in handy (no pun intended!) and it made me feel invincible once again.

My business trip involved systems training all day with our nights free to network. My new Hyatt work family and I would find a spot for dinner and explore Omaha each night. The location that we were staying was in the old marketplace section of the city, which means cobblestones. Cobblestone streets and sidewalks can be an FA’ers’ worst nightmare! However, my team of colleagues was very accepting and welcoming with open arms, literally and figuratively by helping me walk. I couldn’t have asked for a more supportive group of individuals to be traveling with!

Always remember the word “ABLE” is in disabled. Just because you have a fear of doing something you aren’t able to anymore, don’t let it hold you back. I know that I may not be able to accomplish things as effective as everyone else, but I can still do the same things at my own pace and way and still get to the same end result. It is also important to remember to never be afraid to ask for help. There is nothing more critical than your own safety and well-being, it is okay to put your needs first. I had such a positive experience on my first business trip and I can’t wait to do it again!

About Christina:

Christina Logan is currently 26 years old and lives in Philadelphia, PA. Christina works full-time at the Hyatt at The Bellevue, while receiving her MBA at the Johnson & University Online MBA Program. Christina is living a full and independent life in Philadelphia! She is surrounded by constant love and support from her family, friends and her recent fiancé, Justin! She doesn’t know where she would be without everyone and is very grateful for them!

Posted by twodisableddudes on January 16, 2017

003 – Travel and Mobility

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Travel is freedom.  On the surface disability seems to limit that freedom.  But it’s not limited, just different. However you need the right mindset to overcome obstacles.  Join us as we share a conversation about what informs our approach to travel.
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