- My New FaveSeptember 10, 2017 by katstevens8 from United States
As a rare disease advocate I appreciate finding joy in the journey! Kyle and Sean nail it in these awesome podcasts. Bringing humor and humility in each story. Bravo!!!
- Crazy taxis, evil catsAugust 31, 2017 by Facebook fan x 200 from United States
Abbott and Costello, Farley and Spade, Christmas and Dunne, and now... Bryant and Baumstark. I'm still trying to figure out who's the straight man. Whether it's a crazy taxi driver or feral in their kitchen, these two dudes make learning about the disabled community fun. They navigate some pretty serious subjects while breaking it up with stories and their quirky sense of humor. The large variety of guests keeps me coming back for more. Looking forward to the next one!
- Should be called Two Awesome DudesJune 20, 2017 by sackingsjessa from United States
Really great insight to living with a disability and how to push beyond. Fun and effortless conversation. Funny and charasmatic dudes. A postive and encouraging podcast for all. Keep up the great work!
- Amazing podcastMay 6, 2017 by Sput-nick-nick from Australia
Really loving this podcast. Great to hear Sean and Kyle talking about how life is more about how you react than what happens to you and really facing up to their disease. Amazing to hear their stories and really feel like you are part of their conversation and journey.
- Wonderful podcastApril 1, 2017 by Megfiona from United States
Kyle and Sean have such an effortless way about their conversations. They are funny, informative, inspirational, and genuine. I very much enjoy listening to and supporting this podcast. And I'll keep trying to contact people at Uber or Lyft to sponsor you. 🙂 Thanks for doing such great work!
- Inspirational, optimisticMarch 29, 2017 by Teroid from Australia
This podcast is great. Two things stand out for me so far: 1. Sean and Kyle talking about dealing with diagnosis very openly and honestly and concluding that by being involved in raising awareness of FA "I take control of my FA. It no longer controls me." 2. Your life is defined 10% by things that happen outside your control and 90% by how you respond. I look forward to hearing more pearls of wisdom!
- InspirationMarch 9, 2017 by JMStaub from United States
Love these guys; they're a must listen for anyone living with a disabling condition, and an example for all.
- Such a positive perspective!February 1, 2017 by Monica-colorado from United States
I love these guys and I am so happy to have found their podcast. I love their attitude about traveling despite mobility challenges. My husband has MS, and while I think we have a can-do attitude, we have a lot to learn from Kyle and Sean.
- It is life!January 29, 2017 by MiniMe_Sar from United States
This has truly helped me and my husband with his diagnosis. He wanted to ignore it for a very long time and hearing how you both handled your news was so great! Knowing people with disabilities (and in our case, THIS one) and hearing they lead normal lives is so refreshing instead of all they are told they CAN'T do! Love how it covers things that happen everyday and how different people cope.
- Makes us feel understoodJanuary 26, 2017 by Chollingsworth62 from United States
Really enjoying this podcast from Kyle and Sean. They inspire all people. Everyone can take away a lesson in life from them.
- The Unspoken TruthJanuary 23, 2017 by Avery Zaritsky from United States
I listened to this in the car this morning while driving my kids to school. By the time we got there, we were all laughing and they said "pause it, play the rest at pick up! We want to hear it!" Its so nice to know I'm not fighting the disabled battle alone and it gave me and my family back some tolerance! Very inspiring, keep up the conversation!!!
- Smart, funny, caring, informativeJanuary 22, 2017 by hbredfeather from United States
I love this podcast! I really appreciate the honest, open sharing that is peppered with laughter & good information about navigating the world for those with (and without) disabilities. The Welcome episode really sets the stage for what Kyle & Sean are facing with FA and it also reveals a friendship that is fun to listen in on. I've listened to the next 3 episodes so far & enjoyed them all - it's helping me with how I view myself and others in the world. We all face challenges and struggles. The hosts encourage us all to live better in each moment, yet apply compassion when we each may stumble. This podcast is a bright spot and motivation to "live with urgency" as a Kyle & Sean do. Thanks dudes!
- Easy listen!January 22, 2017 by Joeytyler2017 from United States
Funny, articulate, educational and professional sounding! For a couple disabled dudes, they knock this podcast out of the park! Sean and Kyle allow the listeners to hear their unique and humorous perspectives on life from the disabled view. Highly recommend.
- Real peopleJanuary 19, 2017 by Famlw from United States
As an able-bodied individual, I find this podcast so helpful and genuinely interesting. Kyle and Sean's stories of their real life experiences have helped me see their challenges from a different perspective.
- Thumbs up - A1January 17, 2017 by Afishyfish80 from Ireland
Loving this podcast. Relaxed, frank and often funny conversation about the challenges and nuances of living life with a disability. Have listened to 4 episodes and it's now my favourite podcast. Keep up the good work lads. BR
- 00, 01, 02, 03January 17, 2017 by Spinner's Dad from United States
All 4 sessions are great!
- Brilliantly upliftingJanuary 8, 2017 by Adam Griffies from United Kingdom
As someone with FA myself, listening to this has been amazing. Such a great insight into life with Friedreich's Ataxia, or maybe any other disability. Would definitely recommend listening.
- Add this to your playlist!January 2, 2017 by Howard Hess from United States
Meet Kyle and Sean, two dudes who suffer from Friedreich's Ataxia (FA). Unfamiliar with FA? Doesn't matter. Give 'em a listen. You won't find two more genuine and likeable guys out there. Amongst their friendly banter and casual conversation, you'll find insight, inspiration, and encouragement... all this and more from a couple of guys who don't let their disability define what they can and cannot do.
- Your new favorite podcast. For real.December 13, 2016 by EMagone from United States
If you don't already know Kyle, level yourself up and do some research. One of the most amazing humans I've been fortunate to encounter. This is just the latest layer of his epic legacy in the world. <3
- Awesome perspective on disability.December 13, 2016 by Matt Lafleur from United States
Gives some much-needed brevity to the lives of people with disabilities. Doesn't try to be showboating or sugary inspirational. Just genuine. 2 dudes talking over Skype about their lives, which tends to be affected by a rare disorder they share, Friedreich's ataxia. Poignant. Can't wait for more episodes.
Kyle’s Dad, Mike Bryant joins us to talk about Team FARA in Race Across America and what it took to get the team safely across the country in “The World’s Toughest Bike Race.”
And Kyle tells a short story about being held hostage by a cat.
In this episode, Kyle & Sean talk about how building community has helped them and how it could help YOU.
“No man is an island…,” as John Donne reminds us.
Growing up with a rare disease is, almost by definition, lonely. Faced with physical limitations that most of our neighbors don’t have to face many times makes us feel odd. With ataxia, we go through issues with balance that make us seem awkward and clumsy; but all people with disabilities face some kind of uncommon limitation, whether its using our arms or leg, trouble hearing, speaking, or seeing, facing mental issues or any other symptom of a disability. The unfortunate result is that many of us with disabilities feel odd.
“To hear from and learn from people who are in the same position…there’s nothing that compares to it.”
A lot of our focus lately has been of Friedreich’s ataxia or FA – the disease that both of us share. And that shouldn’t be a big surprise. FA has had a huge impact on us – it has forced us to see life in a different way and adapt. We have each had friends that have helped shape that impact. One of those friends is Matt Fritsch. Matt has a spinal cord injury and in this episode he joins us for a conversation about how community is essential for all of us no matter what disability we have.
“[Being disabled] is an exclusive club that no one joins on purpose…the parking is a right, not a privilege.”
As promised, here is the second half of our interview with Ron Bartek, president and cofounder of the Friedreich’s Ataxia Research Alliance, or FARA. Please note that the audio quality is less than ideal, but still definitely enjoyable.
Along with Ron’s very impressive resume, we found out that he learned to sleep standing up in Army Ranger School. Ron discovered much of what the body could do when deprived of normal physical needs like sleep and food.
The idea for the Ataxian Athlete Initiative (AAI) adaptive cycling equipment grant program came when Kyle received a grant from the Challenged Athletes Foundation, which he used to purchase a Catrike recumbent trike. That purchase changed his life: while on it, he didn’t feel as physically limited as he felt most times. Realizing how impactful that grant was for him, he created a grant specifically for people with FA, to purchase adaptive cycling equipment, which is often times cost prohibitive for someone with a disability.