000 – Welcome to the Two Disabled Dudes Podcast!

Welcome to the show! In this episode Kyle and Sean talk about creating the podcast and their connection through the diagnosis of Friedreich’s ataxia (FA). The focus is on the empowerment they get by connecting to the FA community, the Rare Disease Community, and anyone with similar experiences.

A few of the resources we talked about in the episode:

 

Friedreich’s Ataxia Research Alliance (FARA): curefa.org.

Rare Disease community
National Organization of Rare Disorders (NORD): rarediseases.org
Global Genes: globalgenes.org
Rare Disease Day: rarediseaseday.org, for US activities: rarediseaseday.us

 

Episode 001 will be posted next Monday, 12/19 and then every other week after that.

Leave a Reply

Your email address will not be published. Required fields are marked *